Great things are going on at RMHBDA!
Two Walks! Save the Date(s)!
2017 Walk for Hemophilia
September 16 — Billings, MT
September 23 (changed) — Kalispell, MT
Rocky Mountain Hemophilia & Bleeding Disorders Association announces our Annual Montana and Wyoming Walk for Hemophilia, benefitting those suffering from bleeding disorders in the Montana and Wyoming community.
We are hosting two walks this year in Kalispell and Billings, Montana. Team and Personal Fundraisers compete for the Top Team and Personal Fundraiser Awards in the state from Montana and Wyoming. All proceeds from these fundraising efforts will benefit Rocky Mountain Hemophilia & Bleeding Disorders Association.
Using social media, online fundraising pages, and more Rocky Mountain Hemophilia & Bleeding Disorders is leveraging the power of the web to raise funds. Visit our Facebook page, and become a fan today and stay in touch with our current events!
Can’t make it? We understand! But you can still participate and contribute by hosting a “mini walk,” BBQ, small party, or event in your community, or search out “virtual walkers” who can’t attend as well! Tell them they can, “sleep in, save gas, get a t-shirt,” and make a big difference for your family and families throughout Montana and Wyoming. Also, call Brad Benne to find out how you can help! Your support is appreciated, this is your organization!
Visit http://hemophiliawalk.donordrive.com for more information and to register to raise critically-needed funds for our chapter of the National Hemophilia Foundation.
Contact Brad Benne at 406.586.4050 or firstname.lastname@example.org for fundraising support, questions, and/or comments.
New Programs Coordinator: Lisa Maxwell
“We (RMHBDA) are beyond fortunate to announce the hiring Lisa Maxwell as our Programs Coordinator. Lisa's experience and commitment to our chapter and to our community on both a local and national level has been critical to the success of our chapter. Her past tireless work as a volunteer and as a board member will serve our chapter well as she transitions to being an extraordinary asset at RMHBDA,” shared executive director Brad Benne.
Lisa's experience with RMHBDA includes:
In regard to her new role with RMHBDA, Lisa offerred, “This organization has given me and my family much needed education, support, and lifelong friendships. It is my hope to give back to other families all these blessings that this chapter has given me.”
Lisa will work from her home base of Great Falls, Montana, and can be contacted at email@example.com
Patient Assistance Programs
A great new resource from the NHF:
“While the ACA’s implementation did many great things to provide access to healthcare coverage for the hemophilia and related bleeding disorders community, affordability still remains an issue for many. NHF’s Public Policy Team is often asked about resources available to assist patients with paying their premiums or out-of-pocket costs. In response to your inquiries, we have developed this document detailing patient assistance programs that remain available to members of the bleeding disorders community. Note the "accurate as of" date in red at the top right-hand corner. As changes are made to any of the programs listed, we will do our best to update the Patient Assistance document, and make the most recent version available to you.
“We have mentioned in previous updates that some insurers are not accepting third party assistance for qualified health plans (QHPs) purchased in the health insurance marketplace. The list currently includes certain insurers in Oregon, Montana, Idaho, New York, Nebraska and Louisiana. Therefore, it is possible that consumers will not be able to use an assistance program if they are enrolled in one of these plans. ”
Patient Assistance Programs document
from RMHBDA (updated 3/9/15)
from NHF (updated 9/15/14)
Blood Disorder Web News
RMHBDA Quick Facts Datasheet
Our mission is to improve the quality of care and life for persons with inherited bleeding disorders, including hemophilia and von Willebrand Disease through education, peer support, resources, and referral.
RMHBDA is a 501(c)(3) nonprofit organization founded in 2000 and is a chartered chapter of the National Hemophilia Foundation and a chapter of Hemophillia Federation of America,