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Programs

2017 Education Weekend & RMHBDA Annual Meeting

February 17–19, 2017

Registration Deadline February 1.

Location:
Hilton Garden Inn, 2023 Commerce Way, Bozeman, Montana

Event Hosts:
RMHBDA & the University of Colorado Hemophilia & Thrombosis Center

Feb
17

It’s time for the 13th Annual Education Weekend for people affected by bleeding disorders in Montana and Wyoming!

You and your family are invited for a weekend of informative sessions, youth programming for all ages, and an opportunity to connect with others dealing with similar challenges.

Online Registration

This education weekend and annual meeting of RMHBDA is designed to bring you education, up-to-date information about life with a bleeding disorder, and connect you with other families in our two-state area.

Check-in for the event will be Friday, February 17 from 4–6 p.m. followed by a dinner sponsored by CSL Behring.

On Saturday morning, we will cover topics like Healthcare Reform, State Advocacy efforts, Von Willebrand's Disease, Infusion Education and Product Update presented by Dr. Marilyn Manco-Johnson, Children's programming, and Men and Women's programming.

For our youth, we will have a variety of programming available. Please pack your life-jackets for pool time in the afternoon!

Don’t miss your chapter’s annual meeting for all members on Saturday — important decisions will be made at this meeting and your input is needed! Lodging and meals will be provided to attending members, so don't hesitate to send your registration off today! Don't miss this opportunity with your Chapter, Industries, HTC Staff, Accredited Speakers, and your family. It will be a special and rewarding weekend for all.

Need assistance to attend Education Weekend?

RMHBDA will provide Patient Assistance applications in all registration packets. Please save all gas, food, and travel expense receipts! If you have any questions, please direct them to Brad Benne, Executive Director at 406.586.4050.

RMHBDA Education Weekend Schedule

Friday, February 17

4:00 – 6:00 pm Registration & exhibits
6:00 – 6:15 pm Welcome
6:15 – 7:30 pm Dinner & Program, sponsored by CSL Behring

Saturday, February 18

7:00 – 8:00 am Breakfast
8:00 – 10:30 am Sessions
10:30 – 12:00 pm Exhibits/Break
12:00 – 1:00 pm Lunch/Sponsored by Shire
1:00 – 3:00 pm Annual Meeting/BOD Development
3:00 – 7:00 pm Bowling/Free Time

Sunday, February 19

7:00 – 8:00 am Breakfast (on your own)
10:30 am Check out/Good Byes

Safe Travels! Thank you for coming!

2017 RMHBDA Family Camp

June 16–18, 2017

Camp on the Boulder, 
McLeod, MT 59052 www.campontheboulder.org

June
16

Each summer, RMHBDA invites affected families living in Montana and Wyoming to attend a weekend retreat. The weekend is packed full of education, bonding, and fun!

For the parents and teens, we will have teambuilding programming led by our guest, hemophilia leadership expert, Pat Torrey and some time to relax with other families. This is a great opportunity to learn from and share experiences with one another.

We also have many great activities planned for our campers including arts & crafts projects, field games, and educational sessions for children with bleeding disorders and their siblings. Infusion classes will be offered from our HTC.

Register now! Deadline June 1

Contact Brad with any questions at brad@rmhbda.org , 406.586-4050

Save the Date!

2017 Mile High Colorado Camp

July 14–21, 2017

July
16

Leadership Pre-Camp Retreat July 14–16

When and Where?

The Hemophilia and Thrombosis Center (HTC) is proud to once again sponsor the summer camp program

Who Should Attend?

  • Children with hemophilia or other bleeding disorders
  • Siblings of the above groups
  • Mile High Colorado Camp is for ages 7–18.
  • Check back with us soon to learn about the different programs we offer at camp!

Why Attend Camp?

The purpose of camp is to learn about bleeding disorders, develop skills, and have fun! Campers will have the opportunity to meet new friends and participate in a variety of traditional camp activities. As always, we have included educational components with the goal of encouraging self-confidence and independence.

Many campers have learned to perform self-infusion, experienced teamwork, and discovered new skills during the week of camp. Staff at the Hemophilia & Thrombosis Center (HTC) and Rocky Mountain Village wants this to be a wonderful experience that creates a wealth of fond memories for your camper.

What Does It Cost?

Each family is required to pay a non-refundable $75 deposit. The remainder of the camp cost, approximately $1000 per camper, is underwritten by other sources. If you have questions or need additional information, please call Brad Benne at 406.600.2554. Scholarship forms are available. Scholarships will be granted on an individual basis.

Help Send A Child To Camp!

Make a dream come true this summer! Your contribution will send a youth to hemophilia summer camp at Mile High Camp in Colorado. Your support makes a lasting difference in the lives of children with a bleeding disorder.

Two Walks! Save the Date!

2017 Walk for Hemophilia

September 16 — Billings, MT

September 23 (changed) — Kalispell, MT

Rocky Mountain Hemophilia & Bleeding Disorders Association announces our Annual Montana and Wyoming Walk for Hemophilia, benefitting those suffering from bleeding disorders in the Montana and Wyoming community.

Sept
9/16

We are hosting two walks this year in Kalispell and Billings, Montana. Team and Personal Fundraisers compete for the Top Team and Personal Fundraiser Awards in the state from Montana and Wyoming. All proceeds from these fundraising efforts will benefit Rocky Mountain Hemophilia & Bleeding Disorders Association.

Using social media, online fundraising pages, and more Rocky Mountain Hemophilia & Bleeding Disorders is leveraging the power of the web to raise funds. Visit our new Facebook page, and become a fan today!

Can’t make it? We understand! But you can still participate and contribute by hosting a “mini walk,” BBQ, small party, or event in your community, or search out “virtual walkers” who can’t attend as well! Tell them they can, “sleep in, save gas, get a t-shirt,” and make a big difference for your family and families throughout Montana and Wyoming. Also, call Brad Benne to find out how you can help! Your support is appreciated, this is your organization!

Visit www.hemophilia.org/walk for more information and to register to raise critically-needed funds for our chapter of the National Hemophilia Foundation.

Info & Registration

Contact Brad Benne at 406.586.4050 or brad@rmhbda.org for fundraising support, questions, and/or comments.

 

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