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Save the Date!

2014 Walk for Hemophilia

Saturday, September 6, 2014

Zoo Montana, 2100 South Shiloh Road, Billings, MT 59106
Registration 8:00 am
3k & 1.5k Walk 9:00 am

Contact: Hemophilia Walk Event Manager 406.586.4050

To be eligible for a special drawing prize, register as a Team Captain by July 30!

Visit www.hemophilia.org/walk to create or join a walk team; click on the “MT” link, then click on your preference: “Register,” “Donate,” “Create a team,” or “Join a Team.” We’ve raised over $14,000 as of June 30th!

Can’t make it, we understand! But you can still participate and contribute by hosting a “mini walk,” BBQ, small party, or event in your community, or search out “virtual walkers” who can’t attend as well! Tell them they can, “sleep in, save gas, get a t-shirt,” and make a big difference for your family and families throughout Montana and Wyoming. Also, call Brad Benne to find out how you can help! Your support is appreciated, this is your organization!

Rocky Mountain Hemophilia & Bleeding Disorders Association announces the 3rd Annual Montana and Wyoming Walk for Hemophilia, benefitting those suffering from bleeding disorders in the Montana and Wyoming community. We are hosting a walk in Billings, Montana on September 6, 2014, registration begins at 8:00 am at Zoo Montana. Team and Personal Fundraisers compete for the Top Team and Personal Fundraiser Awards in the state from Montana and Wyoming. All proceeds from these fundraising efforts will benefit RMHBDA.

Top Fundraisers (as of June 30, 2014)
  1. Jodi Rudell $565
  2. John & Will Benne $100
  3. Daniel Markham $100
  4. Chris Graham $100
  5. Lisa Maxwell $25
Top Teams (as of June 30, 2014)
  1. The VW Ladybugs Plus One $615
  2. Blood Brothers III $100
  3. Ty’s Crew 2 $100
  4. Biogen Idec $100
  5. MAX OUT $25

Visit www.hemophilia.org/walk for more information and to register and raise critical funds for our chapter of the National Hemophilia Foundation.

Using social media, online fundraising pages, and more, RMHBDA is leveraging the power of the web to raise funds. Visit www.facebook.com/rmhbda, and become a fan today!

Rocky Mountain Hemophilia & Bleeding Disorders Association, a chapter of the National Hemophilia Foundation, is a 501(c)(3) non-profit organization incorporated in 2000 to address the needs of the bleeding disorder community in Montana and Wyoming. RMHBDA’s mission is to improve the quality of care and life for persons with inherited bleeding disorders, including hemophilia and von Willebrand Disease through education, peer support, and resource and referral.

Contact Brad Benne at 406.586.4050 or brad@rmhbda.org for fundraising support, questions, and comments.


MT & WY Hemophilia Walk Kickoff & Baxter True Identity Seminars

You Are Invited to the Kickoff Celebration/Baxter Facts True Identity Education Seminars.

We will have food and quality education provided by Baxter. And of course, loads of helpful information on how to make your walk team make the last two weeks of fundraising really count! We can’t wait for you to join us.

Billings August 12 | Bozeman August 13 | Helena August 14 | Kalispell August 15

Please RSVP: Brad Benne, brad@rmhbda.org or 406.586.4050

The True Identity program is an interactive, educational series that covers a wide variety of topics affecting the hemophilia community. True Identity seminars bring together hemophilia experts, caregivers, and those living with hemophilia to address issues and questions in an open, conversational setting.

Family Camp 2014

Our annual Family Camp would not be possible without our generous program funders: Colburn Keenan Foundation, CVS Caremark, Bayer Baxter, Biogen Idec, CSL Behring, Grifols, Novo Nordisk, Pfizer Hemophilia, and Walgreens Infusion Services.

RMHBDA Family Camp was held June 20–22, 2014 at Camp on the Boulder near McLeod, Montana at the base of the Beartooth Mountains. Eighteen families attended that included 29 youth and 36 adults. Thank you to all who attended.

Adults and youth ages 11–17 participated in a powerfully engaging program that is designed to inspire adults and kids to believe in their own ability to function at their optimal level and challenge them to grow. Presented by Pat Torrey, and made possible by Pfizer Hemophilia.

Children ages 2–10 enjoyed numerous arts and crafts projects, games, and building forts in the woods, supported by wonderful counselors from the Camp on the Boulder staff.

Thank you to the camp committee and our chapter volunteers: Ryan Smith, Billy Duckworth, Kent Pointer, Lisa Glass, Sue Riter, and Dr. Marilyn Manco-Johnson. Your good work and valuable time made family camp a wonderful experience for everyone!

Education Weekend 2014

A special “Thank you” to our HTC for co-sponsoring our Education Weekend! Thank you to our generous program funders: Accredo Health, Inc., Bayer Healthcare, Baxter Healthcare, Biogen Idec Hemophilia, CSL Behring, CVS Caremark, HF Healthcare, Kedrion USA, Novo Nordisk, Pfizer Hemophilia, and Walgreen Infusion Services.

Education Weekend was held April 4–6, 2014 in Helena with 19 families attending (23 youth and 30 adults). Educational sessions included: infusion session, industry/product exhibits, “My Life Our Future,” living a healthier lifestyle, partnering with your school, and healthcare reform. All members visited our exhibitors to learn more about each company and their products.

RMHBDA welcomed three extraordinary additions to our Board of Directors: Sean Jeffrey of Missoula, Van Savage of Malta, and Lisa Glass-Ferriter of Helena (all in Montana). We are truly grateful to Sean, Van, and Lisa for volunteering their time to serve our community!

Special thanks to Lisa Maxwell, Lisa Glass-Ferriter, Van Savage, and Ryan Carter for assisting with the organization of the event!

First RMHBDA Scholarships Awarded

Congratulations to the first RMHBDA scholarship recipients Jessica Amende and Lane Maxwell. They each received $1,000 from RMHBDA to pursue their career and educational aspirations. On behalf of the RMHBDA Board of Directors and the RMHBDA family, we wish Jessica and Lane great success and happiness as they pursue their goals.

Through the RMHBDA, we recognize the many individuals including the board of directors, governance bodies, donors, sponsors, and each and every member as a reason to exist as well as the reason we do exist. From the generosity of many and due to the needs of our members, it has been a long time goal for us to be able to offer scholarships to our membership. We believe that knowledge and understanding is the key to the future for the bleeding disorders community. We also understand that the generous service and commitment of our members is the reason for the success of RMHBDA. With this scholarship program, we want to recognize those individuals who have shown commitment to the bleeding disorders community through their actions. We look to all those within our reach: those with bleeding disorders, parents, siblings, etc. We want to reward those who show courage, understanding, and a commitment to the betterment of the lives of those affected. We wish all students the very best of luck in their endeavors. Stayed tuned for details regarding the RMHBDA scholarship application in the spring of 2015.

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Our mission is to improve the quality of care and life for persons with inherited disorders, including hemophilia and von Willebrand Disease through education, peer support, resources, and referral.

RMHBDA is a 501(c)(3) nonprofit organization founded in 2000 and is a chartered chapter of the National Hemophilia Foundation and a chapter of Hemophillia Federation of America,

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