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RMHBDA Education Weekend 2016

February 19–21

Our Education Weekend will take place at the Holiday Inn, Bozeman, Montana. We need help organizing! Please contact Brad at 406.586.4050 if you are interested in serving on the Education Weekend committee — this is your organization!

Online Registration Registration Deadline February 1

Location: Holiday Inn, 5 East Baxter Lane, Bozeman, MT

Event Host: RMHBDA & the University of Colorado Hemophilia & Thrombosis Center

It’s time for the 12th Annual Education Weekend for people affected by bleeding disorders in Montana and Wyoming!

You and your family are invited for a weekend of informative sessions, youth programming for all ages, and an opportunity to connect with others dealing with similar challenges.

This education weekend and annual meeting of RMHBDA is designed to bring you education, up-to-date information about life with a bleeding disorder, and connect you with other families in our two-state area.

Check-in for the event will be Friday, February 19 from 4–6 p.m. followed by a dinner sponsored by CSL Behring.

On Saturday morning, we will cover topics like Healthcare Reform, State Advocacy efforts, Von Willebrand’s Disease, Infusion Education and Product Update presented by Dr. Marilyn Manco-Johnson, Children’s programming, and Men and Women’s programming.

For our youth, we will have a variety of programming available. Please pack your life-jackets for pool time in the afternoon!

Don’t miss your chapter’s annual meeting for all members on Saturday — important decisions will be made at this meeting and your input is needed! Lodging and meals will be provided to attending members, so don’t hesitate to send your registration off today! Don’t miss this opportunity with your Chapter, Industries, HTC Staff, Accredited Speakers, and your family. It will be a special and rewarding weekend for all.

Need assistance to attend Education Weekend?

RMHBDA will provide Patient Assistance applications in all registration packets. Please save all gas, food, and travel expense receipts! If you have any questions, please direct them to Brad Benne, Executive Director at 406.586.4050.

RMHBDA Education Weekend Schedule (tentative)

Friday, February 19

4:00 – 6:00 pmRegistration & exhibits
6:00 – 6:15 pmWelcome
6:15 – 7:30 pmDinner & Program, sponsored by CSL Behring

Saturday, February 20

7:00 – 8:00 amBreakfast
8:00 – 10:30 amSessions
10:30 – 12:00 pmExhibits/Break
12:00 – 1:00 pmLunch
1:00 – 3:00 pmAnnual Meeting/BOD Development
3:00 – 7:00 pmBowling/Free Time
6:00 pmDinner & Program, sponsored by Baxter Healthcare

Sunday, February 21

7:00 – 8:00 amBreakfast (on your own)
10:30 amCheck out/Good Byes

RMHBDA SPONSOR AD

2016 RMHBDA Family Camp

July 29–31, 2016

Flathead Lake
United Methodist Camp
21339 Methodist Camp Rd., Rollins, MT
(406) 844-3483 www.flatheadcamp.org

Each summer, RMHBDA invites affected families living in Montana and Wyoming to attend a weekend retreat. The weekend is packed full of education, bonding, and fun!

For the parents and teens, we will have teambuilding programming led by our guest, hemophilia leadership expert, Pat Torrey and some time to relax with other families. This is a great opportunity to learn from and share experiences with one another.

We also have many great activities planned for our campers including arts & crafts projects, field games, and educational sessions for children with bleeding disorders and their siblings. Infusion classes will be offered from our HTC.

Contact Brad with any questions at brad@rmhbda.org, 406.586-4050

Men’s Retreat:
Blood Brotherhood Event

The Chartered Fishing Trip on Flathead Lake from Lakeside, MT was held August 1. We held a dinner with Sharon Funk, PT, UC/HTC at Jagz in Kalispell where 23 people attended the dinner. Sharon shared her expertise with the group regarding the many benefits of physical therapy elating to those dealing with bleeding disorders.

On Saturday, ten men and their children went charter fishing on Flathead Lake. We had a beautiful day on the water and the kids had a wonderful time.

2015 Walk for Hemophilia Results

Participation was great for our 4th Annual Montana and Wyoming Walk for Hemophilia. Altogether, over $52,000 was raised including these top fundraisers and teams — your work was awesome and deeply appreciated!

Top Fundraisers

Top Individual Fundraisers

  1. Chris Graham $4,300
  2. John & Will Benne $3,705.25
  3. Campbell Hunter $3,590
  4. Dylan Hunter $1,995
  5. Kevin Amende $1,395
  6. Travis Bruyere $1,150
  7. Jodi Rudell $940
  8. Kristal Graham $928
  9. Lisa Maxwell $770
  10. Rose Woods $619.75
  11. Connor Ferriter $500
  12. Christy Berg $375
  13. Raven Card $315
  14. Forrest Berg $300
  15. Chris Hunter $300
  16. Jaxon Stafford $258
  17. Julane Wells $250
  18. Stephanie Hines-Hernandez $220
  19. Silent Donor $200
  20. Katie Schneider $200

Top Teams

  1. Ty’s Crew III $9,825
  2. The Warriors $6,685
  3. Blood Brothers IV $5,092.25
  4. Bodacious Bleeders $2,025
  5. Best of the Bleed $1,928
  6. Clot Like an Amende $1,570
  7. VW Ladybugs Plus One $1,265
  8. RMHBDAvitus $1,150
  9. MAXOUT $870
  10. Connor’s Comrades $700
  11. Red Moon Walkers $619.75
  12. We Bleed Red & White $470
  13. Biolife Plasma Services $465
  14. WyoRed’s15 $303
  15. Trot to Clot $300
  16. CohenourFive $100
  17. von Willebrand Walkers $50
  18. St. Vincent Healthcare Foundation $2

Patient Assistance Programs

A great new resource from the NHF:

“While the ACA’s implementation did many great things to provide access to healthcare coverage for the hemophilia and related bleeding disorders community, affordability still remains an issue for many. NHF’s Public Policy Team is often asked about resources available to assist patients with paying their premiums or out-of-pocket costs. In response to your inquiries, we have developed this document detailing patient assistance programs that remain available to members of the bleeding disorders community. Note the "accurate as of" date in red at the top right-hand corner. As changes are made to any of the programs listed, we will do our best to update the Patient Assistance document, and make the most recent version available to you.

“We have mentioned in previous updates that some insurers are not accepting third party assistance for qualified health plans (QHPs) purchased in the health insurance marketplace. The list currently includes certain insurers in Oregon, Montana, Idaho, New York, Nebraska and Louisiana. Therefore, it is possible that consumers will not be able to use an assistance program if they are enrolled in one of these plans. ”

Patient Assistance Programs document

from RMHBDA (updated 3/9/15)

from NHF (updated 9/15/14)

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Old articles are available here

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Our mission is to improve the quality of care and life for persons with inherited bleeding disorders, including hemophilia and von Willebrand Disease through education, peer support, resources, and referral.

RMHBDA is a 501(c)(3) nonprofit organization founded in 2000 and is a chartered chapter of the National Hemophilia Foundation and a chapter of Hemophillia Federation of America,

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