Great things are going on at RMHBDA!
2017 RMHBDA Family Camp
June 16–18, 2017
Camp on the Boulder,
McLeod, MT 59052 www.campontheboulder.org
Each summer, RMHBDA invites affected families living in Montana and Wyoming to attend a weekend retreat. The weekend is packed full of education, bonding, and fun!
For the parents and teens, we will have teambuilding programming led by our guest, hemophilia leadership expert, Pat Torrey and some time to relax with other families. This is a great opportunity to learn from and share experiences with one another.
We also have many great activities planned for our campers including arts & crafts projects, field games, and educational sessions for children with bleeding disorders and their siblings. Infusion classes will be offered from our HTC.
Register now! Deadline June 1
Contact Brad with any questions at firstname.lastname@example.org , 406.586-4050
RMHBDA Education Scholarships
We believe that knowledge and understanding is the key to the future for the bleeding disorders community. We also understand that generous service and commitment of our members is the reason for the success of RMHBDA. With this scholarship we want to recognize those individuals who have shown commitment to the bleeding disorders community through their actions.
Application period is January 1 through June 1 each year.
RMHBDA Montana License Plates
UPDATED: Now Available!
The RMHBDA Montana License Plate is now available! https://dojmt.gov/…/pla…/service-organizations-associations/
New Programs Coordinator: Lisa Maxwell
“We (RMHBDA) are beyond fortunate to announce the hiring Lisa Maxwell as our Programs Coordinator. Lisa's experience and commitment to our chapter and to our community on both a local and national level has been critical to the success of our chapter. Her past tireless work as a volunteer and as a board member will serve our chapter well as she transitions to being an extraordinary asset at RMHBDA,” shared executive director Brad Benne.
Lisa's experience with RMHBDA includes:
In regard to her new role with RMHBDA, Lisa offerred, “This organization has given me and my family much needed education, support, and lifelong friendships. It is my hope to give back to other families all these blessings that this chapter has given me.”
Lisa will work from her home base of Great Falls, Montana, and can be contacted at email@example.com
Patient Assistance Programs
A great new resource from the NHF:
“While the ACA’s implementation did many great things to provide access to healthcare coverage for the hemophilia and related bleeding disorders community, affordability still remains an issue for many. NHF’s Public Policy Team is often asked about resources available to assist patients with paying their premiums or out-of-pocket costs. In response to your inquiries, we have developed this document detailing patient assistance programs that remain available to members of the bleeding disorders community. Note the "accurate as of" date in red at the top right-hand corner. As changes are made to any of the programs listed, we will do our best to update the Patient Assistance document, and make the most recent version available to you.
“We have mentioned in previous updates that some insurers are not accepting third party assistance for qualified health plans (QHPs) purchased in the health insurance marketplace. The list currently includes certain insurers in Oregon, Montana, Idaho, New York, Nebraska and Louisiana. Therefore, it is possible that consumers will not be able to use an assistance program if they are enrolled in one of these plans. ”
Patient Assistance Programs document
from RMHBDA (updated 3/9/15)
from NHF (updated 9/15/14)
Blood Disorder Web News
RMHBDA Quick Facts Datasheet
Our mission is to improve the quality of care and life for persons with inherited bleeding disorders, including hemophilia and von Willebrand Disease through education, peer support, resources, and referral.
RMHBDA is a 501(c)(3) nonprofit organization founded in 2000 and is a chartered chapter of the National Hemophilia Foundation and a chapter of Hemophillia Federation of America,