Great things are going on at RMHBDA!
2017 Education Weekend & RMHBDA Annual Meeting
February 17–19, 2017
Registration Deadline February 1.
Hilton Garden Inn, 2023 Commerce Way, Bozeman, Montana
RMHBDA & the University of Colorado Hemophilia & Thrombosis Center
It’s time for the 13th Annual Education Weekend for people affected by bleeding disorders in Montana and Wyoming!
You and your family are invited for a weekend of informative sessions, youth programming for all ages, and an opportunity to connect with others dealing with similar challenges.
This education weekend and annual meeting of RMHBDA is designed to bring you education, up-to-date information about life with a bleeding disorder, and connect you with other families in our two-state area.
Check-in for the event will be Friday, February 17 from 4–6 p.m. followed by a dinner sponsored by CSL Behring.
On Saturday morning, we will cover topics like Healthcare Reform, State Advocacy efforts, Von Willebrand's Disease, Infusion Education and Product Update presented by Dr. Marilyn Manco-Johnson, Children's programming, and Men and Women's programming.
For our youth, we will have a variety of programming available. Please pack your life-jackets for pool time in the afternoon!
Don’t miss your chapter’s annual meeting for all members on Saturday — important decisions will be made at this meeting and your input is needed! Lodging and meals will be provided to attending members, so don't hesitate to send your registration off today! Don't miss this opportunity with your Chapter, Industries, HTC Staff, Accredited Speakers, and your family. It will be a special and rewarding weekend for all.
Need assistance to attend Education Weekend?
RMHBDA will provide Patient Assistance applications in all registration packets. Please save all gas, food, and travel expense receipts! If you have any questions, please direct them to Brad Benne, Executive Director at 406.586.4050.
RMHBDA Education Weekend Schedule (tentative)
Friday, February 17
|4:00 – 6:00 pm||Registration & exhibits|
|6:00 – 6:15 pm||Welcome|
|6:15 – 7:30 pm||Dinner & Program, sponsored by CSL Behring|
Saturday, February 18
|7:00 – 8:00 am||Breakfast|
|8:00 – 10:30 am||Sessions|
|10:30 – 12:00 pm||Exhibits/Break|
|12:00 – 1:00 pm||Lunch/Sponsored by Shire|
|1:00 – 3:00 pm||Annual Meeting/BOD Development|
|3:00 – 7:00 pm||Bowling/Free Time|
Sunday, February 19
|7:00 – 8:00 am||Breakfast (on your own)|
|10:30 am||Check out/Good Byes|
Safe Travels! Thank you for coming!
Handmade Levi & Custom Travel Bags
Fundraiser for The Rocky Mountain Hemophilia and Bleeding Disorders Association Wyoming Community Events
Handmade Levi and custom order travel bags are designed and created by two grandmothers dedicated to helping raise financial support for bleeding disorder communities. The bags feature large back pockets and two interior “pants” pockets perfect for cell phone, car keys, etc. Price is $45 with proceeds donated to the Rocky Mountain Hemophilia and Bleeding Disorder Association on behalf of Wyoming Bleeding Disorder Community Awareness and Support.
Patient Assistance Programs
A great new resource from the NHF:
“While the ACA’s implementation did many great things to provide access to healthcare coverage for the hemophilia and related bleeding disorders community, affordability still remains an issue for many. NHF’s Public Policy Team is often asked about resources available to assist patients with paying their premiums or out-of-pocket costs. In response to your inquiries, we have developed this document detailing patient assistance programs that remain available to members of the bleeding disorders community. Note the "accurate as of" date in red at the top right-hand corner. As changes are made to any of the programs listed, we will do our best to update the Patient Assistance document, and make the most recent version available to you.
“We have mentioned in previous updates that some insurers are not accepting third party assistance for qualified health plans (QHPs) purchased in the health insurance marketplace. The list currently includes certain insurers in Oregon, Montana, Idaho, New York, Nebraska and Louisiana. Therefore, it is possible that consumers will not be able to use an assistance program if they are enrolled in one of these plans. ”
Patient Assistance Programs document
from RMHBDA (updated 3/9/15)
from NHF (updated 9/15/14)
Blood Disorder Web News
RMHBDA Quick Facts Datasheet
Our mission is to improve the quality of care and life for persons with inherited bleeding disorders, including hemophilia and von Willebrand Disease through education, peer support, resources, and referral.
RMHBDA is a 501(c)(3) nonprofit organization founded in 2000 and is a chartered chapter of the National Hemophilia Foundation and a chapter of Hemophillia Federation of America,